a grey hoodie and black yoga pants

It is entirely possible to wear a grey hoodie and black yoga pants too many days of the week. Initially, one might not think this is possible. But, after three and a half weeks of not working, such attire has become a uniform of sorts. And uniforms inevitably start to have an unfun feeling to them. The grey hoodie and black yoga pants have become the uniform of absenteeism, illness, and feeling down and out. The grey hoodie and black yoga pants have gone from fun after work/weekend lounge clothes to a uniform I no longer want. I now find myself at a loss when I arrive home in the evening as I am already in my “evening lounge clothes.”

My weekly laundry is now down to one easy load full of yoga pants, t-shirts, and other related exercise and lounge wear along with the usual socks and underwear. Yesterday I had an appointment that required “real clothes” and I had to unearth my favorite black and blue Ralph Lauren dress with a long black flowy jacket. I put on the dress and jacket with the pearl necklace my sister gave me for my birthday years ago, black pantyhose and long black boots. It’s amazing what clothes do to the spirit. Just putting on this outfit restored some of my sense of usefulness.

Shiny orange running shorts and a print t-shirt, soft from repeated washings, with a chihuahua dog on the front that states, “No more stinkin’ tacos!” make up the new evening lounge wear. Given that the temperature outside has started to plummet, there is little chance that this getup can become the new uniform of being down and out.

Make the right choice

Every year since 2008, this, right here, is the week that I dearly wish would pass by without notice. How lovely it would be to glance at the calendar in early September, and think, “Oh, hey, that typically dreaded horrible anniversary week in late August went right on by without notice. Look at that!”

Alas, but no, that is not the case. All the progress I’ve made to date feels like it’s slipping through my fingers, like thin beach sand that easily flows through our fingers as we let it fall. My body feels as dissociative and floaty as ever, as if I’ve not seen Doc for the last two years. The will to continue is dreadfully hard to yank out of me, and yank is exactly what I have to do in order to put one foot in front of the other, in order to not give in to the incessant thoughts of an end. An end that would be just that, an end with pain for others, and that is, sadly, what keeps me going this very moment -others. I am hardly continuing on for myself. No, right now there is too much regret over the life choices that led to that terrible week in late August of 2008. There is too much awareness of the fact that I threw my life into a deep and wide ditch that week from which I may never fully extract myself. Right now, I continue for others, like my two nephews whom I love, and though I know they think I’m goofy, they do look up to me. And what a terrible life lesson I would be dropping in their lap if I were to leave this earth by my own volition.

I know that if I were to make this choice that I would be presenting it to them as a viable choice, and I don’t want to be that person for them.

In order to try to shake the depressed feeling, I try to focus on the good fortune I have in my life.

The fact is this, there is not a whole hell of a lot that separates me from someone that is called a “consumer” in our statewide mental health system. Similar to someone that has a “serious and persistent mental illness,” or rather (SPMI) as it’s called, in my worst moments of DID and PTSD, things like laundry, grocery shopping, cooking and cleaning become fantasies and dreams. But, because I have been blessed with resources I am able to send my laundry out to the wash-and-fold service, hire a cleaning service, and eat outside the home. Even with these services in play, I can still struggle with getting out of bed, getting into the shower, and getting dressed because I am floaty and dissociative. But at least in those instances I’ve narrowed down the things I must accomplish, which is the best way for me to have some semblance of success when I am in that state.

Even so, I am acutely aware of the fact that I have a job that pays me enough so that I can pay for the services I’ve mentioned above. This salary, and the fact that I have a friend that lets me stay with him when I am too afraid to be by myself, these are the only things that keep me from becoming part of the system of care.

And just when one would think I would sit here and feel blessed about my resources, I sit here and get scared instead. I get scared because I know it’s the job that provides the resources, which means I need to continue to do the job, and do the job well. Lately, when every morning is a fight with myself, I ask, “How much longer can I fight? How much longer can I juggle this?”

Then I loop back to my brain telling me that it’s a fruitless fight, and that’s when I remember why I threw myself at the mercy of my friend today, and asked if I could stay with him for a while. He said “sure” and asked me what was up, and between tears I said, “I get too scared by myself right now, and bad choices are floating in my brain.” He then took my hand, and said, “But you’re making a good choice now.”

Just for today

The PTSD brain can be hard to trust when it gets jacked up. It just takes off down the road like a scared chihuahua. Too many things become anxiety producing and stressful. You become hyper-vigilant, and immediately jump to the worst possible conclusion in too many scenarios. In the far reaches of your mind you know that every situation in your life cannot possibly be this dire. But when your brain is amped up on PTSD fear it can be increasingly difficult to conjure up the objective and reasonable side of your brain. And with a certain amount of this hyper-vigilance, it does not take long before the dark veil of despair becomes a fixture over your head. 

It works like this: First comes hypervigilance, then indefinite despair that is difficult to kick. You want to just shoo it away, but like an incessant weed, it comes back. 

There are intermittent moments of hope, such as those fleeting moments with friends at breakfast, or the renewed energy from that breakfast that makes you think you can do some baking today. You head to the grocery store to get items to attempt a straight-forward recipe for gluten free donuts. But after trips to Bed, Bath and Beyond and the grocery store you find yourself seemingly glued to the seat of your car. You feel too heavy to move, and you know the floaty feeling is settling in. You make a phone call in order to reach out for help, but there is no answer. So, you turn up the air conditioning to try to jump start yourself out of being stuck. But you just get cold, you’re still stuck. You read your Facebook feed, and then your emails on your phone. Finally, you resolve to get out of the car. You have to plan it out in your mind: all the moves that will get you out of the car, and into the apartment. Your skills as a stage manager in college come in handy for this exercise. 

Finally, you come inside the apartment and throw a leftover quiche in the oven for dinner. The gluten free donut recipe now seems like a far-fetched fantasy. 

Somewhere in the back of your mind you know there are good reasons to keep going, keep trying. You decide that just for today you have to trust that those reasons are real and worthwhile. Otherwise, there is nothing else.